Julianna is our five-year-old daughter. She has a severe neuromuscular disease called Charcot-Marie-Tooth (CMT).
Her body is not strong enough for this world, but her mind, heart and spirit are perfect. She teaches us how to be joyful in the face of a cruel disease.
Our life with Julianna has been heartbreaking, humbling, funny and sweet. There have been plenty of tears, but more laughter. We hope to show the many sides of life with a medically fragile child.
Learn more about us here: Cast of Characters