On Julianna Going to Heaven
6/21/16 CNN — Elizabeth Cohen’s personal reflection on Julianna. I think she really “got” her.
6/20/16 CNN — online article
6/22/16 CNN Live — Elizabeth Cohen speaks
6/14/16 People magazine online: “We have no regrets.”
Julianna’s Tea Party Coverage
6/21/16 CNN — online article with video: “It was a funeral with a dress code: fabulous.”
1/13/16 online article with video
1/14/16 online article that details J’s daily care
1/15/16 online article: One of the reasons we’re continuing to share our story is to make the world a safer place for parents who care for and love terminally ill children. When people assume that they know what your child ‘has and what you are going through, it’s just that – an assumption. And when assumptions lead to judgment, it’s really unfortunate. — Michelle Moon
KBS: (Korean Broadcasting System)
Julianna’s Christmas – a documentary that aired in South Korea on Christmas Day 2015.
Part 3: — my favorite one. It also contains a link to our Anderson Cooper segment.
My first public stab at writing.
June 2015 — How Our Daughter Helps Us Face Our Greatest Fear
This is not an easy read. While response to my first Mighty story was largely positive, there were a few who did not understand. I sincerely hope that many parents do not have to understand what it’s like when your child has terminal neuromuscular disease. This piece details our decision to start palliative care.
Another late night conversation with J. Her words come from a different place.
Capturing Grace Photography
Aubrie LeGault is a photographer in Portland, OR and she does amazing work. The name of her company says it all — it’s exactly what I wanted for our family. She spent a morning with us in June 2015 and kindly featured us on her blog.