So many people have told us they wished they could “do” something, or asked if they could help. You can, and here’s how:
1) Pray for us
2) Do something to make a Truly Living Girl Proud
Forgive someone. Find joy in a crappy situation. Be bold: speak the truth but be kind. Make a moment. Accessorize & don’t be afraid of color! If you love someone, make sure they know. Don’t spend too much time with boring “grown up things” (for J, that would be the news, phones and computers).
Tell us how J inspires you by leaving a comment or photo on our “I am Truly Living” page. We’d love to see what you are doing.
CMTA: this is the main organization in the US that promotes awareness and funding for CMT research. The CMTA recently donated $6000 to fund genetic testing for our family. We want to pay them back — and then some. (Goal: $60,000).
Make-A-Wish Oregon: This wonderful group gave Julianna her princess room, and they helped provide healing to our whole family.
Doernbecher Children’s Hospital: Julianna may hate the hospital, but she loves everyone in it. We are grateful to the amazing staff at DCH.
4) Buy her book – “Julianna’s Adventures” — 100% of proceeds go to CMTA