Current Fundraising Events

Julianna’s Adventures:

Support independent publishing: Buy this book on Lulu.


Julianna’s book is now available on for $20. All proceeds will go to CMTA. Please buy a copy, spread the world, and help Julianna create a (REAL) world with CMT.

To buy the book, go here:

Support independent publishing: Buy this book on Lulu.


CMTA (Charcot-Marie-Tooth Association)

My nerves don’t let me breathe or walk so well. — Julianna Snow, age 5

CMTA is a 501(c)(3) federally recognized charity. This organization has a 4 star rating by Charity Navigator and its vision is imagining a world without CMT. It advocates, provides resources and funds research.

Our goal is to raise $60,000 for the CMTA. Please give in Julianna’s honor here.



6 thoughts on “Current Fundraising Events

  1. I have 4 children, I read Juliannas story a couple of months ago, googled her today to see how she was doing and found your blog. Her story has given me more patience with my children, I am so grateful for what I have and I pray for Julianna to recover, I so, believe in miracles. I pray for her to be able to have the babies she wants, and to be able to eat and do things that 5 year olds do. She is an amazing child, one of my heroes. Your son is also one of my heroes, he is an amazing brother. Seeing the pictures on your blog, you see the love they have for each other. Thank you so much for sharing this story, you should sahre it as much as possible !


  2. Little one, you are adorable! My heart aches for your suffering little sister, it makes me cry. But my Spirit jumps for joy when I read your words, “Don’t worry, God will take care of me.” I cry, even now yet not for sadness sake. Your words changed tears of sadness to tears of joy. Wow, so much power in such a small package. It is said that we find Gods Strength with-in our own weakness. In you I see it is true.
    Again, U R ADORABLE! -daniel knight


  3. Pingback: Julianna's Adventures - Help 5 Yr.-Old Julianna Raise Funds for CMT Research -

  4. Michelle, Steve and Alex,
    I just watched Juliana’s story on CNN. While I am deeply touched by the story, your courage and your amazing collection of your journey with Princess Juliana I am also feeling blessed for having the chance to learn about all of you and the angel who recently made her transition.
    I could not agree more with your decision to share Juliana’s story. She was born to be more than a child who left this world at such an early age. She has been reborn into the magnificent well being and the examplary lessons she is leaving behind for all of the generations to come so they can learn about compassion, about happiness, about enjoying every minute of their lives because only ONE knows when is our last day on earth.
    Juliana is and will continue to be a beautiful spiritual being who lived a short human experience. She will be remembered forever. My heart goes to you Michelle and Steve and to Alex for the patience and for the support that I know he has given you in one or another way.
    Love forever ! making a donation to your fund,


  5. How much is the t short and how can I order? May God continue to bless your family. HIS grace is always overflowing. From Singapore.


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