Writer’s block has settled in. It’s been frustrating, but good because it reflects our stable, routine lives of late. Boring is sometimes marvelous.
It’s all changed, so here’s an update and request for prayer.
Julianna’s feeding tube (the G-J) tube stopped working tonight. Without it, we have no way to feed her or give fluids, so it has to be replaced soon — like, tomorrow.
This is not so simple. It means an ambulance ride to the hospital (we don’t have a way of transporting her for any long car trips) and getting it changed with interventional radiology. We’re coordinating with our hospice nurse, and she’s advised us to stay home tonight and let her make calls first thing in the morning.
Julianna asked if she’ll need an IV, and I was honest: maybe. There were some tears, and she’s scared. We promised her all kinds of toys (and maybe some visit from her old hospital friends), and she promised us that she would hold still so that they won’t have to put her to sleep.
G-J tubes don’t last forever. J’s lasted over 18 months, which is probably some kind of record. We knew this would happen one day, but as time stretched on, you forget. You want to believe that the happy, stable, good times will last forever.
Please pray for:
— Safe transport to and from the hospital. (J hasn’t been in a car for more than five minutes at a time for the last year).
— that they get us on the schedule early tomorrow and it’s a quick and simple change
— that J doesn’t need an IV. Or if she does, they get it the first time
— that this G-J works just as well as the first.