I forget sometimes, how fragile Julianna is.
The morning after I wrote my last post (the one that celebrated a cold-free winter that has allowed Alex and Julianna to spend precious time together), Alex woke up with a cold. A very mild one, but enough to make us employ the usual infection control protocol. Since I also had the tiniest of sore throats, I got Alex and Steve got J. From Sunday to Wednesday evening, I had no physical contact with my Julianna. I gave her air hugs and blew kisses, and I grilled Steve about their nighttime conversations.
Wednesday night, things were looking promising. My throat felt fine, and Alex was feeling better too. Maybe we could come together as a family again soon.
Then it all changed. Steve called me to the room just after I got Alex down. J had thrown up/gagged/retched/whatever it is you do when there’s no food in your stomach but stuff comes up. We think she has some sort of stomach bug, but it all happened so fast. She was breathing fast and hard and her oxygen levels were low – which means that she probably aspirated.
The night was OK. She had a fever but it responded to Tylenol. We’re back on oxygen and increased BiPAP settings. We’ll start antibiotics again today and watch her like a hawk. It’s all very familiar – and I hate it. Last night, I felt it again, the physical pain that comes when your heart hurts. She was doing so well.
Julianna is happy and playful except when she has a wave of nausea. I gave her a new baby Elsa doll as a bribe to finish a neb treatment, and she was delighted. Breathing hard, she still had the energy to comment: “She’s gorgeous! I love her headband…”
Our Julianna…the strongest and most fragile girl we know. We’re reminded again that we can take nothing for granted.
Please pray/send good thoughts. We want Julianna happy and comfortable.