Remember how I said that, in medicine, it’s good to be “unremarkable”? I’m going to have to rethink that terminology. Our last 24 hours have been remarkable, medically speaking and otherwise — and it’s all been good.
— Steve and I did shift change at 1:30AM. J stirred and asked for a group hug. Quite different from the rough nights we were imagining.
— J woke up with her squeaky voice! She used it all day to invent drama (in her playhouse, I mean).
— J can actually lay in her bed again without being short of breath. This was still an issue yesterday. She’s a lot more comfortable this way.
— The oxygen is off! She still may need some extra oxygen at night, but I’m watching it right now and so far so good.
I can’t really explain any of this. One of her doctor’s once told me that, with J, there is no margin for error. Any little thing can tip us over the edge. We lived this many times over. J is far weaker now than she was last year, and she is sailing through this cold. It doesn’t make sense.
One of the things I have learned (the hard way – it’s always the hard way with me) is to not overthink things. Some days, it’s enough to know just that it was a good day. And we are so thankful.
Moments for today:
- Alex discovered that he’s an excellent fan dancer. The music: Carrie Underwood’s version of “Hark the Herald.” Choreography: all Alex. It was sometimes graceful and sometimes explosive (“all force and no vector” to quote Steve). Julianna loved it – but had to warn him several times to not hurt her fan.
- Emmet and Lucy (from the Lego Movie) joined in on the castle fun. The little Emmet minifigure has two faces – one side is brave and one side is scared. I asked J to give me her “Brave” face:
Me: But that looks like your cute face.
J: Mom, it’s the same thing.
I went to sleep last night feeling that I didn’t quite get this post right. This is what I’d like to add:
When I say that I can’t really explain all of this, I mean it. From a human doctor’s perspective, J’s quick recovery makes no sense. What we are witnessing is a miracle: it defies explanation.