“Hark the Herald”

23 June 2015 (version of Facebook Post)

DSC00213
Spring 2012. At her peak strength, J could stand well with one-hand support.

Regression is one of the cruelest aspects of Julianna’s disease. This bunny moment is bittersweet.  At one point, she was able to stand with assistance. No BiPAP or GJ tube here either. It’s very different today.
Tonight, I read Psalm 23 to her out of a children’s story Bible. The story explained that Psalms means “songs.” She asked me why I “talked a song.” I told her that reading a Psalm was like saying the words to a song. As an example, I recited the first verse of “Hark the Herald”, one of Julianna’s favorite song.
She did not approve. She shook her head, and said “No, let me show you.” She sang the first verse of “Hark the Herald” to me, BiPAP and all. Afterwards, she said she needed to rest her voice and asked me to hug her. She closed her eyes, and I thought for a moment that she was going to fall asleep. Unusual, because sleep doesn’t come easily for our girl. She opened her eyes after a few minutes and declared her voice “rested.” Then she was asleep.
Another lifetime ago, she was able to sing all three verses of the song.  This life is different. Singing just one verse took a lot out of her, but she did it. She knows that some songs simply have to be sung.

J3

Dec 2013. Christmas photo. Image by Jennifer Rilatos Photography

One thought on ““Hark the Herald”

  1. Pingback: Five Months | Julianna Yuri

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s